Find the help you’re looking foR
Resource Directory
Search our list of agencies offering services and support for people with developmental disabilities and their families.
Agencies offering a service or support for people with developmental disabilities and their families
The Directory of Resources is an alphabetical listing of agencies by service category. There are 10 services categories. Many agencies are listed under two or more categories. Each of these agencies offers a service or support for people with developmental disabilities and their families. It is the hope of the DDRB that this directory will assist you in identifying programs to obtain the services needed as well as offer choices. Please feel free to contact any of the agencies listed for information or direction in meeting your needs. It is the mission of each of these agencies to provide services and programs to support you and your family.
Step 1: Select a Category
Step 2: Select an Agency
ABA Consulting Services
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Offers social skill assessments and situational examples using applied behavior principals, Early Start Denver Model, an individualized early intervention approach designed for children 7months to 5 years of age, and Promoting Emergence of Advanced Knowledge, a curriculum that ensures skills learned are generalized over different settings.
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An ABA clinical company that provides high quality, ethically oriented applied behavior analysis (ABA) services to children with autism and other developmental disabilities. Services include ABA therapy, early intervention, social skills groups, school-readiness preparation, tutoring, early literacy training, and parent and professionals training.
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Phone 573-882-3600 (V/TTY) Provides technical assistance by phone and electronically for questions relating to ADA (Americans with Disabilities Act). Calls are confidential and knowledgeable staff is available Monday through Friday, from 8:30 a.m. to 5:00 p.m. central time to provide compliance solutions. The Great Plains Region serves Missouri, Kansas, Nebraska and Iowa.
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TECHNOLOGY FOR INDEPENDENCE: Offers individuals and when applicable, their direct support staff, with in-person and virtual instructional sessions on the use of technology to increase accessibility in various life areas.
Adapt-Ability
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Toll Free: 866-370-0001 The agency mission is to enable people with disabilities through technology. Assistive technology services include: assessment of the person, device, family, and environment; training and support for use of devices, including maintenance, repair, and modifications. Services focus on seating/mobility, home modifications, and job site accommodations. Serves persons with developmental disabilities of varying ages.
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United States Justice Department, Americans With Disabilities Act (ADA) website offers information, publications, and technical assistance regarding ADA regulations.
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A wearable GPS and voice monitoring system for individuals who may wander or elope.
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Services include consumer driven retirement support groups, in-home support, referral, retirement planning, an annual Aging with Developmental Disabilities Conference, and off-site day habilitation contracts with the Missouri Department of Mental Health. Individuals eligible to receive services have a diagnosis of a developmental disability, are 50 years of age or older who are recently retired or currently in some type of vocation.
DDRB provides funding for the following two projects:
RETIREMENT GROUP SUPPORT: Serves individuals age 50 and older who have been employed to increase their independence, make informed choices and exercise their leadership abilities within group settings in the community.
RETIREMENT PLANNING – INDIVIDUAL: Assists individuals age 50 and over who are considering retirement or who are already retired. Services encompass all life areas including retirement feasibility as well as connections for engaging in non-work activities.
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Association of University Centers on Disabilities is a network of interdisciplinary centers advancing policy and practice for and with individuals with developmental and other disabilities, their families, and communities. The website offers numerous resources.
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Provides applied behavior analysis (ABA) for children 18 months of age and older through customized treatment plans to help each child by involving families with hands-on support, education, and training. With Board Certified Behavior Analysts and Registered Behavior Technicians ASN also collaborates with school, physicians, and other support systems for a holistic approach.
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Provides passenger transportation for the logistics needs of healthcare and education institutions. Offers transportation solutions specifically tailored to each client’s needs and is focused on the customer experience.
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BCI is a not-for-profit packaging company that provides a choice of productive and fulfilling employment to adults with disabilities. BCI offers a range of employment opportunities, work environments and skills needed to employ people to their level of developed capability. BCI is certified by the U.S. Department of Labor and the Missouri State Department of Education. Requires referral from Missouri Division of Vocational Rehabilitation/case manager.
DDRB provides funding for the following projects:
BENEFITS SPECIALIST: Provides benefits planning assistance regarding Social Security, Medicaid, Ticket to Work, ABLE Accounts and more.
SHELTERED WORKSHOP: Facility-based employment for adults in various packaging and light industrial jobs.
SKILLS CENTER: Provides vocational training in healthcare support, hospitality, information technology, manufacturing, and warehouse to acquire the skills necessary for competitive employment.
TRANSITION EMPLOYMENT SPECIALIST: Assists individuals with setting progressive goals that can lead to work opportunities in community employment. These goals address soft-skills, employment skills and barriers to competitive employment.
SUPPORTED EMPLOYMENT: Provides services of up to 6 hours or less per month to support an individual in competitive community employment.
TRANSPORTATION SUPPORT SERVICES: A three-year pilot project to design and implement a reliable and on-going transportation service for individuals 18 years of age and older needing organizational employment transportation services with future expansion to include day service transportation and community employment. BCI serves as a hub to coordinate with families and service provider agencies with the contracted transportation provider.
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Individuals with disabilities are offered the opportunity to observe and chose from different career paths and receive individualized vocational instruction to achieve work ready skills in competitive employment. By partnering with local companies, businesses gain a pipeline of well trained, qualified and dedicated employees. In addition to vocational training, each student at the Skills Center learns vital soft skills including appearance, attitude, verbal and non-verbal communication, teamwork, problem solving, financial literacy, interviewing, networking and more. Benefits Planning is a stand-alone program to help individuals and families understand ABLE accounts, Ticket to Work Health Assurance and how work affects public benefits such as Medicaid and Social Security. It is available to anyone at no cost and regardless of enrollment to the Skills Center’s services.
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Provides effective behavior services that focus on skill building in the individual, training for the family, and staff/caregiver training. Principals of behavior, characteristics and associated symptoms of various developmental disabilities, common problems, effective strategies for teaching new skills and decreasing problem behaviors, behavior therapy techniques, and training on how to train others is offered. Individuals eligible to receive services have a diagnosis of a developmental disability and are living in their natural home. No age restrictions.
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Additional Hotline numbers: 314-469-6644 and 314-469-3638 (TTY). BHR provides confidential telephone counseling to people in mental health crises as well as mobile outreach services, community referral services, and critical incident stress management (CISM). BHR’s crisis hotline and mobile outreach services are provided free of charge to the public by paid professional staff who have masters degrees in their respective behavioral science disciplines. Mobile outreach is offered on crisis calls where callers would benefit from a higher level of intervention. Master level mental health professionals are sent to caller’s residence or to a local agency to meet face to face and complete a crisis assessment for the purpose of making recommendations for care. Follow-up services are available to help facilitate callers’ connection to needed services.
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BILY is a self-help program by parents for parents of troubled children. The group can help assess the crisis in the family and help with a plan of action regarding the behavior that is acceptable in your home. Meetings are every Monday from 7:30pm-9:30pm at First United Methodist Church, 801 First Capitol Drive, St. Charles, MO.
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MO RIDES MOBILITY COORDINATOR: Coordinates affordable rides for people with transportation challenges. Mobility coordinators assist with finding the most affordable public transportation options to meet specific needs. This service especially benefits senior citizens and individuals with disabilities by helping locate transportation companies that can transport to work, medical appointments, shopping and more.
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(serves St. Charles County children from 5 – 21 years)
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Supports individuals with T.B.I. (Traumatic Brain Injury) and A.B.I (Acquired Brain Injury) and their families through information and referral, resource library, education and training, advocacy efforts, socialization and recreational activities, summer camp, and support group opportunities. No referral necessary.
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Provides early intervention to treat signs and symptoms of autism through evidence-based therapy plans for children aged 18 months to entering full-time school. Therapy plans are designed to help children develop skills for verbal and social interactions, receptive and expressive language skills, daily living skills, readiness skills for school-based learning, and community skills. Therapy includes one-to-one therapy, family guidance meetings, supervision, and parent and family training. BCBAs will continually monitor progress and update a child’s therapy plan as needed.
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Provides services that support individuals with personal care, social activities, behavioral supports, health, vocation and transportation. Services are typically provided in the following community settings: In-Home Supports, Shared Living Arrangements, Individualized Supported Living (ISL), Group Homes and Independent Supported Living Assistance (ISLA). Services are customized to meet individual needs in a manner that maintains the dignity and respect of both the individual and staff providing the service.
DDRB provides funding for the following program:
PRE ISLA (PRE-INDEPENDENT SUPPORTED LIVING ASSISTANCE): Provides training assistance for up to two years forr young adults to gain the skills and resources necessary for a successful transition to independent living with minimal supports.
ISLA (INDEPENDENT SUPPORTED LIVING ASSISTANCE): Provides services of up to 50 hours per month to support an individual to live independently in the community. Supports promote the development of skills for independence for the individual to stay in their own residence and access the community.
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The Center for Autism Education is a non-profit organization licensed by the Dept. of Elementary and Secondary Education. The agency delivers education and therapy to individuals with Autism Spectrum Disorders or developmental disabilities as contracted by local school districts. The Center implements each student’s IEP including all therapies for students age 6 to 21. The Center also offers various before and after school programs and therapies including social skills training, an Asperger’s social club, ABA therapy, O.T., P.T. and speech language therapy. For these programs individual must have a developmental disability and be between the ages of 6 to 21. Transition services are addressed in the student’s IEP. ADULT DAY SERVICES focuses on independence in all aspects of daily living for individuals age 21 and older. Vocational skills and building peer relationships are also addressed. Day Services provides community integration by participating in leisure activities such as swimming, going to the library, bowling, eating at restaurants, going to movies and making small purchases. PARENT TRAINING: Provides training to assist parents with helping their child of any age relate to others, foster speech and language development, create an optimal learning environment and handling challenging behaviors, Serves St. Charles County and all 4 surrounding counties. No referral necessary. Fees vary.
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An independent organization that provides resources to college bound students with disabilities to succeed in college. This site provides advice and next steps when considering which college to attend as well as a brief list of links to web applications and software programs that aid students with various disabilities. Be sure to explore the resources tab.
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School for hearing-impaired children that provides hearing, speech and language evaluation; independent educational evaluations; advocacy; interpreting; assistive listening technology; and information and referral. No referral is necessary.
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A nonprofit organization which places skilled service dogs with people who have disabilities to help them lead lives of greater independence, and places facility dogs with professionals who utilize their dogs’ special skills in healthcare facilities, courthouses, and children’s advocacy centers.
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The Washington University Transgender Center at Children’s Hospital St. Louis offers the only multidisciplinary care available to children and adolescents in the St. Louis region who identify as a gender different from the sex they were assigned at birth. The Center’s physicians, nurses, therapists and support staff are dedicated to providing a safe, supportive and welcoming environment in which transgender people may receive the education, medical assistance and mental-health counseling they need to make decisions that will impact their well-being throughout their lives.
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The Community Council leads community-based efforts in St. Charles County to address health and human service needs through planning and research, organizing coalitions, creating pilot projects, coordinating services, mobilizing community-building initiatives, engaging volunteers, and advocating for needed changes, advising funders and policy-makers, linking people with services through information and referral and directories, and much more.
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Community Living, Inc. provides life enriching services for people of all ages with developmental disabilities. Adult program (ages 18+) include residential, recreation, out-of-home and in-home respite, employment, and support services for adults (day habilitation). Youth programs include in-home respite (all ages), facility based respite (ages 6 to 21), and after school teen club, school break camps and recreational opportunities (ages 12 to 21). School break camps are full day and available throughout the year. Referrals are necessary for all programs.
The DDRB provides funding for the following programs:
CENTER-BASED RESPITE: Serves individuals ages 6-21 who display challenging behaviors and may otherwise be at risk for out of home placement. The program allows the caregiver periodic relief from the responsibilities of caring for their child. Services are offered from 6:00 p.m. Friday to 6:00 p.m. Sunday.
CONSULTATIVE BEHAVIORAL SUPPORT: Behavioral consultant services for children ages 6-21 who require behavioral supports to participate in the SOAR and Respite Center programs.
IN-HOME RESPITE: Periodic relief for parents from the responsibilities of caring for their child and offers opportunities to tend to their personal needs. Families choose their own provider.
RECREATION: Community based recreation and leisure opportunities for adults.
RESPITE CARE HOME: Out of home respite for individuals of any age needing short-term care for a minimum of 24 hours, including those with medical needs. Community Living staff authorize respite hours for families. DDRB funds assist in the daily operation of the respite home.
SOAR TEEN PROGRAM: Social and therapeutic support services for teens aged 12 through the year after high school graduation who need protective oversight when after school, summer and school break child care is no longer available. Activities are offered to improve social, educational and recreational needs.
BUILDING EMPLOYMENT SKILLS TRAINING (BEST) – PILOT PROJECT: Provides individualized skill building that address an individual’s unique barriers to employment.
SUPPORTED EMPLOYMENT: Provides services of up to 6 hours or less per month to support an individual in competitive community employment.
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Formerly Crider Center for Health. Provides primary health care, dental and mental health services for residents in St. Charles, Franklin, Lincoln, and Warren Counties. Services include school and home-based programs including prevention and early intervention mental health services for children and youth; rehabilitation services for adults with a serious mental illness and children with a serious emotional disorder; clinical services including assessment, psychiatry, medication management, and crisis intervention; and residential services for adults in a variety of settings through funding by the Missouri Department of Mental Health and the Federal Medicaid Waiver.
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Individuals of all ages who have a disability are eligible for services. CCL currently provides independent supported living services to individuals who reside in St. Charles County, St. Louis County, St. Louis City and Jefferson County. A referral is necessary from DMH if Medicaid is to fund services. Hours of operation: Monday-Friday, 8:30am – 4:30pm.
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TTY: 314-837-7470 Non-profit organization providing sign language interpreting services. Offers a full-time administrative staff during normal business hours. Interpreting services accessible 24 hours a day through the emergency dispatch system.
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Provides services to support individuals with disabilities in living independently, including: information & referral; training in skills needed to live independently; advocacy support; transportation to medical appointments and for essential shopping; personal care attendants. Eligibility: Person with disability able to direct own care. Serving St. Charles, Lincoln, and Warren Counties. No referral necessary.
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Professional staff of certified educators, therapists and specialists provide a range of highly specialized services to children up to age three with diagnosed visual impairments, including those with additional disabilities. Services vary according to need and are designed to encourage each child’s optimal development. Services can be provided in the home or elsewhere if the child is attending a day care center or other program in the community. The frequency and length of the visits are determined according to the needs of the child and family.
Developing Minds Therapy Services
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Provides treatment focused on equipping pre-school and school-age children with autism with the functional skills they need to interact with the world around them. Treatment involves collaboration between the families served, staff, and outside providers to provide treatment services that are designed to best fit individual needs. Evidence-based treatments are focused on creating behavioral changes that are functional and socially significant. Both applied behavior analysis services and counseling services are provided to address skills needed to navigate everyday life challenges and stressors. Services include: Direct ABA Therapy; Counseling; Parent Training; Social Skills Groups; Parent Education; Community Integration Programs; IFSP/IEP Support; Coordination of Care; and Toilet Training. No referral necessary. Insurance and private pay accepted.
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A local public taxing entity that contracts with agencies to serve individuals with developmental disabilities in St. Charles County. Funded services include: advocacy services, supported daycare, early intervention, family support, transitional programs, respite, adaptive equipment, transportation, supported employment, and recreation. DDRB provides Case Management through an agreement with the Department of Mental Health to individuals 17 years of age and older. All individuals must qualify for services through St. Louis Regional Tri-County Office, Intake Services.
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Disability Benefits 101 is a website that gives you tools and information on health coverage, benefits, and employment so you can plan ahead and learn how income from employment and benefits go together. Additionally, the site offers a free Benefits and Work Calculator to find out how a job may affect your total income and your health coverage.
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Provides opportunities for individuals age 5 through adult who are cognitively age appropriate and have physical or visual disabilities to participate in a wide-variety of sports and fitness activities. Activities are designed to improve self-esteem and promote growth and well being. Call for current listing of sport/fitness sessions. A program registration fee is required. Scholarship funds are available to those who qualify. Volunteer coaching opportunities are available.
The DDRB provides funding for the following program:
SPORTS TRAINING: Offers a variety of recreational sports for individuals aged 5 through adult with physical or visual disabilities and who are cognitively age appropriate. Athletic skills, independence, self-esteem and sportsmanship are focus areas.
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Provides new parent support network, family support, social activities, quarterly newsletter, monthly educational meetings, annual family conference, public awareness, local community support groups and lending library. For St. Charles County support group information contact Randa-Kay Woods at 636-485-3212 or downsyndromestc@gmail.com for meeting dates and times.
The DDRB provides funding for the following program:
FAMILY SUPPORT: Provides education, training, advocacy, and support for individuals with Down syndrome and their families throughout the lifespan.
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Dr. Christine M. Rankin is a clinical psychologist specializing in children and adolescents and those who have austim spectrum disorders including Asperger’s Syndrome and Pervasive Developmental Disorder. Individual and family counseling available.
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Services include community residential living supports, employment supports including employment access for job readiness skills, supported employment, and summer teen employment program. Autism services provide an array of services for individuals with autism spectrum disorders and similar behavior or communication challenges including a parent training program for families to develop strategies to support the family member with autism. Other services include respite care, clinical services, and consultation. Services are available in St. Charles County, St. Louis County, and St. Louis City. No referral necessary.
The DDRB provides funding for the following programs:
EMPLOYMENT ACCESS: Individualized job readiness skills in areas of pre-employment, communication skills, volunteerism, work experience, job shadow opportunities, and transportation for individuals no longer in high school. Individuals receive between 1 and 3 hours of services per week.
PEERS: Teens ages 11 to 17and young adults aged 18-21 learn and practice social skills that lead to healthy and meaningful friendships in this 14-week group session program. Parents also learn how to assist their teen in making and keeping friends.
SUMMER TEEN EMPLOYMENT PROGRAM: A collaborative effort of area supported employment providers offering paid summer work experiences in the community to high school students with developmental disabilities to prepare them for employment upon graduation. The service includes job skill assessment and on-the-job training.
SELF DETERMINATION IN ACTION: Offers “My life, My Rights” and “Self-Advocacy Leadership” educational, mentoring and leadership training programs that increase self-advocacy and self-determination skills.
PRE-ISLA (PRE-INDEPENDENT SUPPORTED LIVING ASSISTANCE): Training assistance for up to two years for young adults to gain the skills and resources necessary for a successful transition to independent living with minimal supports.
ISLA (INDEPENDENT SUPPORTED LIVING ASSISTANCE): Provides services of up to 50 hours per month to support an individual to live independently in the community. Supports promote the development of skills for independence for the individual to stay in their own residence and access the community.
SUPPORTED EMPLOYMENT: Provides services of up to 6 hours or less per month to support an individual in competitive community employment.
Elisa Garland Counseling Services, LLC.
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Provides counseling services and assessments to children and adults with varying abilities including autism, mood disorders, anxiety, depression, bi-polar, and trauma disorders. Accepts Medicaid, MO HealthNet, Home State Health, Cigna and Mercy Behavioral Health, out of pocket pay and sliding scale fee. No referral is necessary and serves St. Charles County, St. Louis City and County and surrounding areas. Telehealth appointments provided during pandemic.
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Provides non-emergency transportation service with uniformed drivers who are medically certified and trained to assist with special needs. Transportation can be used to transport individuals and families to an from appointment, local grocery store or simply when a ride is needed.
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Provides advocacy; information and referral; employer and general public education and speakers. Supporting persons with epilepsy, parents of children with epilepsy or persons who would like to learn more about epilepsy.
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Offers a variety of children and family services including Foster Care, Mental Health, Housing Services, Crisis and Outreach, Home and Community Based Supports, and Virtual Care.
FAMILY SUPPORT NETWORK: Provides counseling services by trained therapists to families with a child up to the age of 18 with developmental disabilities to equip families with strategies that help to prevent incidents of abuse and neglect.
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The agency serves individuals and the community through parent training, direct educational advocacy, transition planning, community education, mediation, self-advocacy, and referral for individuals with developmental disabilities and/or mental illnesses. Also provides Family Support Partner for families of children with developmental disabilities and a Parent Partner for families of children with serious emotional disturbance. Serves children ages 3 through 21 and their families.
ADVOCACY: Supports individuals birth through age 21 with developmental disabilities and their parents by assisting them in planning programs and/or resolving issues related to education and community inclusion. Classes are offered for families and parents to learn effective advocacy skills and pertinent information such as the IEP process, various disabilities, communication skills and parenting techniques.
FAMILY SUPPORT PARTNER: Families are partnered with experienced staff who are also parents of individuals with developmental disabilities. Through this shared perspective the parent partner helps the family navigate service systems to secure needed services, and resources that help keep families intact.
PEOPLE FIRST OF ST. CHARLES: Creates new opportunities for individuals aged 18 and over to develop self-advocacy skills that will lead to a better understanding of services available, how to access them, and how to advocate to solve problems and barriers experienced in the service systems.
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Education and Training: Classes are specifically designed to address emotional, behavioral, and relational difficulties caused by early trauma in an honest environment that supports and encourages. The focus is not on controlling behaviors, but partnering with parents to understand their children and help improve the quality of their family life. Parent education services are provided by Developmental Trauma Center instructors, specifically trained in the Neurosequential Model of Therapeutics (NMT).
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Not-for-profit provider of employment services to people with disabilities. Employment services include: direct job placement, specialized services for people with traumatic brain injuries or hearing impairments, skill training programs, and supported employment for people requiring more intensive work site support. Services are available to individuals with a developmental disability who live in St. Charles County and who are eligible for Vocational Rehabilitation and Regional Office Services.
The DDRB provides funding for the following service:
SUPPORTED EMPLOYMENT: Provides services of up to 6 hours or less per month to support an individual in competitive community employment.
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Program offers coordinated services and assistance to young children with special needs and their families. First Steps is designed for children, birth to age 3, who have delayed development or diagnosed conditions that are associated with developmental disabilities. The program assists families with eligible children in choosing therapists, service providers and other professionals, as well as creating a plan to assist with the overall development of their child. Serves St. Charles County and St. Louis City.
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One of five public school districts in St. Charles County.
DDRB provides funding for the following program:
CHILD DAY CARE: Provides supports to students who require additional staff to fully participate in school break programs, before and after school child day care, including full day preschool before and after child care programs.
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One of five public school districts in St. Charles County.
DDRB provides funding for the following programs:
PRE-SCHOOL CHILD DAY CARE: Provides supports to pre-school students who require additional staff to fully participate in full day preschool before and after child care programs.
BEFORE/AFTER CHILD DAY CARE: Before and after school child day care for school age students who require additional staff to fully participate.
CAMP BREAKS/SUMMER: Provides supports to school age children who require additional staff to participate in full day child care that follows the school calendar for breaks and summer break.
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Integrated School-Age Child Care (ISACC) is designed to provide support in the YMCA School-Age Child Care programs for children ages 5-12 with developmental delays at various schools in St. Charles County. Integrated Summer Day Camp provides support in the YMCA Summer Day Camps for children ages 5-12 with developmental delays in St. Charles County. No referral necessary.
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Offers a variety of community health and fitness opportunities. Inclusion and adaptive support services are available to assist with full participation.
DDRB provides funding for the following programs:
BEFORE/AFTER CHILD DAY CARE: Integrated School-Age Child Care designed to provide support in the YMCA programs for children ages 5-12 with developmental disabilities at various schools in St Charles County.
CAMP/BREAKS SUMMER: Provides supports to children aged 5-12 who require additional staff to fully participate in YMCA Summer Day Camps.
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Provides programs for children 3-18 years of age diagnosed with autism. Therapies provided are speech/language, occupational, music, therapeutic listening. Academic and active daily living instruction are provided. Play/social communication skills are based on sensory integration.
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Got Transition is dedicated to improving health care transition supports for youth moving into the adult health care system. Many transition resources and tools have been developed for young adults, family members and health care providers that can be utilized to improve transition preparation and the transition process.
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Formerly Edgewood Children’s Center. Residential and day treatment for severely emotionally disturbed children between the ages of 3-17, providing an array of programs including therapeutic day and residential treatment, diagnostic services, in-home and facility-based respite care, special education, family preservation & support services and therapeutic foster care.
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The organization is a social support organization for youth who live near St. Louis and who are 21 and under and may identify as lesbian, gay, bisexual, transgender, asexual or questioning their sexual orientation or gender identity.
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Offers a limited amount of affordable housing for low income families. Will build accessible homes. Must have at least one child under 18 and must meet HUD income guidelines. Size of home and loan must match income of family.
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Provides wheelchair and ambulatory transportation for St. Charles, Lincoln, Warren and parts of Pike counties.
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Provides 24 hour door to door transportation for individuals with developmental disabilities, senior citizens, and those with visual impairments. Transportation can be scheduled in advance or as needed and can be used for any purpose. Membership is required.
DDRB provides funding for driver compensation, driver mileage, and matching grant funds.
Kelly Storck, LCSW
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A licensed clinical social worker with a private therapy practice in St. Louis whose focus is in gender care across the lifespan and advocacy for the rights of people who are trans, gender-expansive and non-binary. Along with this work, Kelly presents on issues relevant to gender diversity and is the author of, The Gender Identity Workbook for Kids: A Guide to Exploring Who You Are.
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Provides examinations, assessments and referrals for medical consultation for children up to 18 years of age with a number of developmental disabilities. The Center is designated as a Missouri Autism Center by the Missouri Department of Mental Health and is dedicated to treating children with access to a wide range of specialties.
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Specializes in providing individualized, evidence-based ABA therapy care to children and their families. Services are dedicated to making therapy and parent training easily accessible to families from the comfort of their home.
DDRB provides funding for the following program:
VIRTUAL BEHAVIORAL CAREGIVER TRAINING: Provides instruction on Applied Behavior Analysis for parents and caregivers to decrease maladaptive behaviors and increase skills for children and young adults across multiple settings.
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The center enrolls approximately 500 junior and senior students from high schools in St. Charles County. Students spend three class periods each school day at the center. The remainder of their day is spent at the student’s home school in academic and/or other classes that are required for graduation. Students are able to earn both a technical skills certificate and a high school diploma. Fifteen technical programs are offered through an application and competitive selection process. Vocational counseling and job placement services are provided. Level 3 screening for students with special needs is performed when requested by the home school special education teacher and prior to applying to Lewis & Clark Career Center. The screening includes: in-depth work samples, situational assessments, simulated job stations, student interview, behavior observation, and job readiness skills. Once a student with special needs has been accepted, a vocational resource educator is available to serve as a resource to the student and their family as well as a liaison between Lewis & Clark and the home school. Transition services are addressed in the student’s IEP.
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Agency offers a sport camp and recreation to individuals with physical and intellectual developmental disabilities.
DDRB provides funding for the following program:
SUMMER SPORTS CAMP: Offers camps for individuals ages 6 to 21 during various times throughout the year when schools are out of session. Camp services may be offered in a single day session or up to multiple days in a week and available during weekdays and weekends.
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It is the guiding philosophy of Lindenwood University to make its facilities, programs, and classes as accessible to individuals with disabilities as practical. Students who need assistance or accommodations regarding certified disabilities should contact the Lindenwood University’s Disabilities Services Office.
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Supports families living with autism spectrum and related disorders. Offers a unique approach by focusing specifically on families of children ages 3-17 who are high functioning on the autism spectrum. This specialized focus allows staff to more effectively partner, connect, and thrive with the families in their care. Their Social Connections social skills groups help children learn to more successfully interact with their peers to make and keep friends, and they give the kids a chance to practice those learned skills in a group setting.
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The DDRB provides funding for the following program:
SUPPORTED EMPLOYMENT: Provides services of up to 6 hours or less per month to support an individual in competitive community employment.
Mercy (Hospital)
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Provides autism spectrum disorder diagnosis and assessment, medical consultations and follow up, as well as ongoing resources, early intervention services for children 18-60 months and therapeutic services including speech and language pathology, occupational therapy and applied behavior analysis for children and adolescents.
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Services include physical, occupational and speech pathology therapy, autism related programs including individual therapies and social communication groups. Additional services include adolescent sports injury rehabilitation, orthotics and splinting, feeding team and an exterior therapeutic playground for children and adolescents.
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Mercy Neighborhood Ministry (MNM) is an off-site department of Mercy Hospital-St. Louis that focuses on community health and access. MNM has partnerships with over 100 community health and social service agencies, clinics, churches, and schools to connect the economically under-served with health and social service resources. Website offers numerous community resources.
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Provides vocational counseling, job assessment and development, transitional school to work services, work adjustment, job placement and supported employment to disabled and disadvantaged individuals 16 years of age and older.
The DDRB provides funding for the following program:
SUPPORTED EMPLOYMENT: Provides services of up to 6 hours or less per month to support an individual in competitive community employment.
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Provides information and assistance to those 60 and older, and their caregivers regarding available services and resources such as Meals on Wheels, transportation or caregiver assistance, to help seniors remain as independent as possible. No referral necessary. Serving St. Charles County.
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Brain-based assessment, treatment and educational center dedicated to the evaluation and management of neurobehavioral and neurodevelopmental disorders including ADHD, autism spectrum disorders,Tourette’s and more. Programs provide comprehensive, individualized brain-based educational plan for each child.
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Provides trust services for persons with disabilities. Special needs trusts are a type of trust specifically designed for individuals with disabilities. If properly structured and administered, special needs trusts do not affect an individual’s eligibility for benefits such as SSI or Medicaid. In addition, the organization administers the Charitable Trust. Funds of the Charitable Trust are used to provide assistance to individuals with disabilities who meet eligibility and income criteria.
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Assists the blind by transcribing a wide variety of materials into Braille. All ages are served specializing in textbooks for elementary and secondary school children.
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TTY: 800-647-6711 Equipment Technology Consortium (ETC) offers a short-term assistive devise loan program for Missouri schools and agencies. Equipment can be borrowed for up to six weeks for trial before making a purchasing decision, for use while equipment is in for repair, or for other short-term needs. Contact (877) 781-6275, x4651 or etc@rockhurst.edu Telecommunications Access Program (TAP) provides a wide array of adaptive equipment for telephone, internet and e-mail access for Missourians with disabilities whose income is generally less than $60,000 annually. Contact (800) 647-8557 voice or (800) 647-8558 TTY. Show-Me Loans offers an alternative financing program to borrow money at low interest rates for the purchase of assistive technology for Missourians with disabilities and their families whose income is generally less than $60,000 annually. Contact (866) 850-3379. Swap ‘n Shop Equipment Exchange offers the opportunity for consumers to buy and sell “pre-owned” adaptive equipment. Current listing can be found at http://www.dolir.state.mo.us/matp/equipment.htm. For more information contact (866) 850-3379. No referral necessary.
Missouri Commission on Human Rights
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Enforces anti-discrimination laws that prohibit discrimination in housing, employment and places of public accommodation because of race, sex, religion, nathional origin/ancestry, physical/mental disabilities, age (40-69), and housing.
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Toll Free: 800-342-5632 Promote the general well-being of members and legally blind individuals in Missouri. Financial assistance available to persons for adaptive technology. Emergency funding for payment of utility bills, etc. Limited funds to persons who have incurred a medical condition and need help with medical bills. Scholarships available to legally blind students. Summer camp and youth services and mentoring programs also offered.
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Abuse & Neglect Hotline 1-800-392-3738. For Food Stamps, Child Support Enforcement, Temporary Assistance for Needy Families (TANF), Rehabilitation Services for the Blind, Eligibility Determination for MO HealthNet and MO HealthNet for Kids call local number.
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TTY: 573-751-8611 Toll Free: 800-500-7878 The Council is a voice within state government speaking for valued roles and positive social change for people with developmental disabilities. The Council advocates to change systems, hearts, and minds of those responsible for those systems. The Council works toward public policy that promotes independence, productivity and integration for people with developmental disabilities. These goals are achieved through consumer empowerment, system change, leveraging resources and community inclusion.
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Assists individuals who have a physical or intellectual disability become employable. To be eligible for services, an individual must have a physical or intellectual disability that constitutes or results in a substantial impediment to employment and be able to benefit (in terms of employment outcome) from vocational rehabilitation services. Services include diagnostic and evaluation services (to help establish eligibility), physical restoration, guidance and counseling, and training. Training is provided in a variety of settings such as supported employment, on-the-job training, work adjustment training, trade schools, colleges, and job readiness training. Make certain that the intake process at DVR takes place in the last year of high school, prior to graduation. Eligible high school students may participate in on-the-job training.
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This website provides information regarding specific disabilities, major disability topics including services & suppports, community living, daily life, safety and security as well as support groups by disability. The Sharing Our Strengths program offers a free parent to parent/peer support network for parents by pairing a Sharing Our Strengths Parent Mentor who has had similar experiences to share resources and advocacy efforts. The site offers many publications including Charting the Life Course, a tool to assist creating visions for the future.
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The Council assists in an advisory capacity on key disability policy issues. Also provides the following: clearinghouse for disability related information, technical assistance on ADA and other related disability laws, publishes the Legislative Update and the ‘Directory of Resources for Missourians with Disabilities’, sponsors a poster and essay contest for teen/young adults and an annual inclusion award. The Missouri Business Leadership Network offers an employer-driven network to encourage the hiring and promotion of people with disabilities in the workforce.
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Provides individual assistance, IEP support volunteers, and training for communication, legal rights in special education, and the IEP process to ensure all children with special needs receive an education which allows them to achieve their personal goals. Services available state-wide. No referral necessary.
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Serves St. Louis City/County, St. Charles County and surrounding areas. Protects the rights of persons with disabilities in Missouri through information, referral, education, direct advocacy, investigation, legal counsel, and litigation services. Protection and Advocacy for People with Developmental Disabilities (PADD) is one of five federally funded programs available through MO P&A. For application or information call 800-392-8667 and ask for Information Specialist. No referral necessary.
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ABLE accounts give people with disabilities more independence and financial security without jeopardizing benefits. Earnings made on STABLE accounts are not subject to federal or Missouri state income taxes, so long as the earnings are spent on Qualified Disability Expenses. The account can be used for basic living expenses, housing, transportation, education, assistive technology, employment training, personal support services, legal fees, health and wellness, and financial management.
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The Missouri Chapter of TASH works to: educate the community about the full inclusion of people with disabilities; connect consumers and families with community resources; foster positive attitudes about disabilities; influence the legislature and public policy; provide a training forum for consumers, families, and professionals; and empower consumers to participate in community life.
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Provides information, support and education for families and friends of persons with severe mental illnesses, as well as those with a mental illness. Mission is to improve the quality of life for people living with a severe and persistent mental illness. Services include support groups, family mental health education programs and advocacy for improved mental health services for specific programs. No referrals necessary.
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Provides information, support and education for individuals with severe mental illness as well as their families and friends. Mission is to improve the quality of life for people living with a severe and persistent mental illness. Services include a HelpLine, support groups, family mental health education programs and advocacy for improved mental health services for specific programs. No referrals necessary.
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The National Autism Center is May Institute’s Center for the promotion of evidence-based practice. It is a nonprofit organization dedicated to disseminating evidence-based information about the treatment of autism spectrum disorder, promoting best practices, and offering comprehensive and reliable resources for families, practitioners, and communities. Their website offers numerous resources.
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Toll free: 800-344-4867 A wide range of programs are available to persons with MS and their families, including education, advocacy, information, peer support, need based financial assistance and therapeutic recreation. No referral necessary. Serves 90 counties in eastern Missouri and southwest Illinois.
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NECAC is a not-for-profit community action agency delivering a variety of social service programs to low income, elderly, youth, disabled and disadvantaged individuals and families through grants and contractual agreements with federal, state, county and local governments, other not-for-profit organizations and private businesses. NECAC is not a government agency; however contracts with governmental entities.. Community Action is pledged to the idea of people becoming self-sufficient. Services available in St. Charles County.
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Safe and accurate medication administration system to ease the burden on the caregivers and to inspire independence to those wanting it most. Serves people in residential settings or in their natural homes. Intellectual/developmental disability (IDD) pharmacy specialists are available to help customers, patients, and healthcare organizations.
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Assists uninsured or underinsured families where the parent and/or infant have a developmental disability by providing in-home visits to monitor and inform parents of the baby’s progress. Parents are provided the training to support and maintain a healthy, safe environment for themselves and their children ages 0-3.
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For seniors age 60+. Wheelchair accessible vans are available. Rides must be scheduled at least 48 hours in advance. Riders must complete an intake process to access transportation services.
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Advocates on behalf of offenders and alleged offenders with developmental disabilities. Direct client assistance provides liaison support for eligible clients in the development of a treatment plan consistent with the person’s needs, rights and responsibilities. Education and training provides information for criminal justice and social service professionals to enhance the awareness and understanding of the rights and responsibilities of person’s with intellectual and/or developmental disabilities who are at risk to become or who are involved in the criminal justice system. Services are available to individuals 17 years of age and older, and to juveniles under 17 if they are certified to stand trial as adults. Information and referral provides needed information or referral to appropriate resources.
DDRB provides funding for the following program:
ADVOCACY: Advocates on behalf of offenders and alleged offenders with developmental disabilities by providing direct assistance. Provides education and training for criminal and social service professionals.
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One of five public school districts in St. Charles County
DDRB provides funding for the following programs:
ST. CHARLES COUNTY BRIDGE TO SUCCESS: A school-to-work internship program. The interns are Juniors, Seniors and 5th-year transition students ages 16-21 with developmental disabilities that work within the community. The program consists of a collaboration of business, school, and agency staff. Participating school districts are Fort Zumwalt, Francis Howell, Orchard Farm R-5, and St. Charles R-6.
CHILD DAY CARE: Provides supports to students who require additional staff to fully participate in school break programs, before and after school child day care, including full day preschool before and after child care programs.
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En Espanol: 888-460-0008 University of Missouri – Columbia Provides information about ANY parenting question. Masters-level professionals access research-based information to respond to calls by providing supportive conversation, sending print materials, and/or making referrals. Also available through the 1-800 information line is access to the free resource library of parenting materials. The information line also connects callers with Community Connection, a county-by-county database of over 13,000 programs that benefit families throughout Missouri. ParentLink works to create healthy environments for children by strengthening support systems on a statewide and community level. Some programs target parents directly, and others target community members who are working to support parents.
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The City of St. Charles has 23 parks including an accessible dog park, Braille Trail, accessible playgrounds that include accessible swings and metal slides, accessible trails and much more. Contact the Parks Department for assistance with locating a park that meets your needs.
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Park facilities available throughout the city. Rec-Plex located at 5200 Mexico Road, St. Peters and offers recreational facilities and programs. For accommodations contact Parks & Recreation Partnership Inclusion Specialist, Brita Weight, 314-359-9970.
Partners In-Kind
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Provides no-cost psychological evaluations for St. Charles County children and adolescents aged 18 and younger. Psychologists provide comprehensive evaluations which address the full range of emotional and behavioral problems including academic failure, aggression, anxiety, autism, bipolar disorder, depression, oppositionality, sexual behavior problems, substance use, violence, trauma, and more.
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Provides social skills development for individuals age 18 and over who are diagnosed with a higher cognitive functioning developmental disability to develop greater self reliance needed for productive employment and meaningful personal relationships. Services are provided in various group settings in the community by staff who actively participate in all events to help individuals develop their targeted skills and goals. Please visit the website for eligibility and qualification requirements.
The DDRB provides funding for the following program:
SKILLS DEVELOPMENT: Focuses on helping participants develop social interaction, community engagement, pre-employment “soft skills” and transportation skills through staffed activities in various locations throughout the community. Offered in three age groups of 16 to 21, 22 to 49, and 50 plus.
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PCS Behavioral Health has partnered with the Missouri Department of Mental Health, Division of Developmental Disabilities to deliver Enhanced System of Support (ESOS) services to children and adults with an intellectual and developmental disabilities who also experience behavioral challenges that pose a risk to their safety and stability in the community. PCS Behavioral Health collaborates with ESOS members, their various providers, supports, and with state-wide mobile crisis teams to improve their lives and ability to self-regulate and thrive in the community. ESOS focuses on the enhanced coordination of community based, clinically competent services and supports. Referrals can be made by support coordinators, providers, or directly by family members.
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PFLAG is the nation’s largest and oldest LGBTQ+ family and ally organization. Uniting community members with families, friends and allies, PFLAG is committed to advancing equality through its mission of support, education and advocacy. PFLAG promotes the health and well-being of loved ones through support, education and advocacy
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Provides information about living with the late effects of polio and living with a ventilator for polio survivors, ventilator users, their friends, family and health professionals. No referral necessary.
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Missouri’s statewide organization advocating for lesbian, gay, bisexual, transgender, and queer equality through legislative action, grassroots organizing, and community education. Their website contains a list of Missouri bill they are tracking and other resources.
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Rainbow Village provides quality homes in the St. Louis Metropolitan area for people with developmental disabilities. The organization collaborates with agencies that provide residential supports. Partner agencies in St. Charles County are St. Louis Arc, Easter Seals – Midwest, Emmaus Homes, Cooperative Home Care and Open Options, Inc.
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A private, not-for-profit, sub-acute pediatric facility providing high quality, interdisciplinary, specialized care, rehabilitation and treatment for children with medical needs and support services for their families, regardless of their ability to pay. Services offered to children 2 weeks to 21 years of age who are in transition between acute medical care facilities and home.
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Serves as a “clearinghouse” for information on leisure and recreation opportunities for individuals with disabilities. Services include information and referral, scholarships to recreation programs and camps, recreation support funds, and newsletters and special camp guides. Community presentations and customized training programs available. No referral necessary.
DDRB provides funding for the following programs:
COMMUNITY ACCESS VOUCHERS: Offers funding assistance to help defray the cost of recreation programs, overnight camps and travel adventure programs. Funding can also be used to hire support staff to assist with personal care a inclusive non-DDRB funded recreation programs.
INFORMATION AND REFERRAL: Provides a single source of recreation information within the community so individuals with developmental disabilities can participate in inclusive recreational activities.
PARKS & RECREATION PARTNERSHIP: A recreation inclusion specialist works with municipal recreation providers to ensure full accessibility and participation. Participating municipalities are City of St. Peters and City of O’Fallon.
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Division of Family Services Toll free: 800-592-6004 TTY: 314-877-1546 Persons of all ages who are visually impaired or blind may be eligible for the programs offered by Rehabilitation Services for the Blind (RSB) such as: Vocational Rehabilitation Program, Business Enterprises Program, Independent Living Program, Older Blind Services Program, and the Prevention of Blindness Program. No referral necessary.
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Provides shared living residential services through a companion or a host home model as well as intermittent support services that are trauma-informed and person-centered. As housemates, companions and hosts build close relationships with clients by working together to achieve a mutually satisfying home life while ensuring the clients have control over their own lives that promotes independence at home and in the community. RHD Missouri also specialized in arts-based day programs that broaden the horizons of people with developmental disabilities and offers the tools to define themselves as artists through visual arts, music and community involvement.
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Offers a cognitive enrichment program, adult day health care, in-home and community based independent living support, supported volunteer opportunities, family and individual counseling, outpatient medical therapies, adaptive equipment assessments and equipment, comprehensive vocational evaluations, comprehensive rehabilitation services, transition from school to work services, supported employment assessments, job development and placement, job coaching and follow along retention services. Serves individuals with brain injury as well as other developmental disabilities. Some programs have eligibility and referral requirements.
DDRB provides funding for the following programs:
ADAPTIVE EQUIPMENT ASSESSMENTS AND EQUIPMENT: Provides individualized assessment and recommendations for appropriate equipment and administers funds for the purchase of assistive technology, adaptive equipment and home/vehicle modifications that support safety and accessibility to improve independence at home, work or in the community.
PRE-ISLA (PRE INDEPENDENT SUPPORTED LIVING ASSISTANCE): Training assistance for up to two years for young adults to gain the skills and resources necessary for a successful transition to independent living with minimal supports.
ISLA (INDEPENDENT SUPPORTED LIVING ASSISTANCE): Provides services of up to 50 hours per month to support an individual to live independently in the community. Supports promote the development of skills for independence for the individual to stay in their own residence and access the community.
SUPPORTED EMPLOYMENT: Provides services of up to 6 hours or less per month to support an individual in competitive community employment.
Safe Circle Coalition
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Working on the primary prevention of sexual abuse against people with disabilities in the St. Louis metropolitan area. The Safe Circle Coalition offers “Quick Connections” speed dating in a safe environment and education on disability abuse prevention. Find them on Facebook @safecirclecoalition or contact the Director of Family Support with St. Louis Arc.
SCAT (St. Charles Area Transit)
Senior Living
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The link provides information on how to prevent falls for older adults. The main page at seniorliving.org lets you explore tools, guides and expert advice in several categories. All information is researched and provides resources to help seniors live with independence and dignity.
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See Amazing in All Children is a nationwide initiative aimed at communities with children ages 2-5. Developed with input from parents, people who serve the autism community, and people with autism, this website offers families ways to overcome common challenges and simplify everyday activities. At the same time, the project fosters an affirming narrative around autism for all families and kids. Visit their website for information on this initiative.
Sherwood Forest Camp
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Three summer camp programs offered to children ages 7-16: Mini Camps – For 7-10 year olds, designed to introduce children to the summer camp experience. Structured schedule of activities, emphasizing fun and learning about camp. Boys and Girls Camp – For 10-14 year olds, designed to focus on learning new skills, exercising choices, and making friends. Campers choose many activities in groups or independently. Leadership Program – For 13-16 year olds, designed to improve, recognize and use their leadership abilities to help themselves and others achieve goals. Much of this learning occurs as campers challenge themselves in a variety of wilderness camping and team building experiences. Their teacher, clergy, caseworker, etc. must recommend campers for this program. [Community service is a requirement for advancement in the program.]
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Aquatic Therapy is a program designed for people with physical limitations associated with developmental disabilities including cerebral palsy, neurological disorders, orthopedic limitations, hearing and visual impairments. Program offers physical therapy, water exercise, adaptive swimming lessons, and individual and group water programs for the purpose of improving health.
The DDRB provides funding for the following program:
AQUA-ABILITY: Physical and occupational water therapy, physical fitness, and motor development for children and adults.
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Children’s Hospital that provides pediatric specialty care in areas of orthopedic conditions, burns, spinal cord injuries, and cleft lip and palate, in a family-centered environment at no charge. Serves children up to 18 years of age. Income or insurance status does not affect criteria for a child’s acceptance as a patient.
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TTY: 636-922-1343 TTY: 800-325-0778 Administers the nation’s social security program. Social Security provides cash payments to help replace income lost as a result of retirement, disability, or death. Social Security also helps pay the cost of medical care (MEDICARE) for people age 65 or older and for some disabled workers. Administers the Supplemental Security Income (SSI) Program which guarantees an annual income to needy people who are 65 or over, blind or disabled. Social security offers assistance in applying for food stamps and Black Lung benefits. Toll-free from 7:00 a.m. to 7:00 p.m. any business day or visit on line. You can now file ONLINE for some benefits. The St. Peters office serves St. Charles and Warren counties.
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Year-round sports training and athletic competition in a variety of olympic-type sports for children 8 or older and adults with intellectual disabilities.
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One of the 3rd largest public libraries in terms of use in the State of Missouri with 3 regional branches which have larger collections and subject specialists, 4 general purpose branches, 2 Library Express, and 3 mini branches. The District also provides an Outreach Service to nursing homes, retirement centers, people who are home-bound, and the jail. Offers technology and resources for customers to access information from within and outside the library walls. Resources specific to developmental disabilities are available with opportunities to suggest titles or subjects for availability with friendly staff to assist you.
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The Child Development Center is an accredited, not-for-profit child care facility designed to meet the needs of young children between the ages of 6 weeks and 8 years of age. The Center provides a full day environment for children. The Center offers flexible hours and scheduling. Enrollment is on a first-come, first-served basis.
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Provides services to those students providing documented disability information as addressed by the Americans With Disabilities Act and Section 504 of the Rehabilitation Act. Students must identify themselves to the Office of Accessibility Services by providing appropriate documentation of the disabilities from qualified professionals. This should be done a minimum of six weeks prior to the start of the semester. The Office of Accessibility Services can provide accommodations for the assessment test, registration assistance, coordination of classroom accommodations, serve as a liaison with faculty, staff, and community agencies, and provide exams/texts in alternate format.
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Connects individuals and their families to support groups and workshops that provide resources and continuous education; home and center-based therapies to strengthen the body and mind; social and recreational programs to stay active and have fun; employment and training services to reach individual work goals; and residential and adult day programs to stay engaged with their surrounding community.
The DDRB provides funding for the following programs:
LAUNCH: Provides skill development for individuals aged 16-25 who have a goal of living independently, obtaining employment and accessing their community while assisting parents with transitioning from caregiver to an advisory role.
SUPPORTED EMPLOYMENT: Provides services of up to 6 hours or less per month to support an individual in competitive community employment.
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Provides short-term, emergency shelter for children, birth through age 12, including those who have special medical, developmental, physical and/or emotional needs, whose families are faced with emergencies or who are in crisis. Children also receive a physical exam and any needed medication; a developmental assessment, art and play therapy, therapeutic interventions and treatment plans, all in a safe environment. Families receive counseling, parenting support, and referrals to helpful community resources.
DDRB provides funding for the following program:
RESPITE: 24-hour emergency respite for children, birth to age 10. Also provides emergency interventions and supports for families.
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Offers a non-sexual support and educational resource for gender non-conforming adults, significant others, caring professionals and all who support freedom of gender expression. The goal is to provide a nurturing environment conducive to individual growth and development and for networking among the membership regarding supportive health care and legal professionals and businesses in the St. Louis area.
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Provides information on learning disabilities and Attention Deficit Disorder to interested persons through workshops, conferences, educational support groups for parents and teachers, newsletters, resource center, and free packets of information. Services include Crisis Intervention, Cognitive Educational Evaluation, Educational Consultations, One-On-One Tutoring, Study Skills Classes, Early Childhood Outreach Program, Speech & Language, Professional Development, Educational Coaching, and Individualized ACT & SAT Preparation. St. Louis LDA’s staff is available to go into school meetings with parents to help negotiate IEPs and 504 meetings. No referral necessary.
St. Louis Regional Office - St. Charles Office
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Provides Service Coordination to individuals with developmental disabilities to enable them to remain in their homes or community and to help them reach their fullest potential. Occupational/speech/physical and behavioral therapy, habilitative training, residential placement, family support (respite, attendant and home health care, parent training, and environmental adaptation), are offered pending availability of funds. To receive services a person must have mental retardation or some other developmental disability. A qualifying individual’s disability must have occurred before age 22. All conditions must be expected to continue indefinitely.
St. Louis Regional Tri-County Office - Missouri Department of Mental Health
St. Louis Regional Tri-County Office - Missouri Department of Mental Health
WEBSITE
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Provides eligibility determination for Service Coordination to individuals with developmental disabilities to enable them to remain in their homes or community and to help them reach their fullest potential. Occupational/speech/physical and behavioral therapy, habilitative training, residential placement, family support (respite, attendant and home health care, parent training, and environmental adaptation), are offered pending availability of funds. To receive services a person must have an intellectual or other developmental disability. A qualifying individual’s disability must have occurred before the age of 22. All conditions must be expected to continue indefinitely.
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Provides supported living and independent supported living services. Recreational programs include summer camps and year-round adventure programs. Summer camp programs are available for children of all abilities 8-17 years of age and adults with developmental disabilities over 18 years of age. Campground is located on 60 acres in Dittmer, Missouri.
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The Arya Foundation is a local non-profit that provides financial aid to purchase medical supplies and equipment for children with different abilities.
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The primary goal of The Child Advocacy Center of Northeast MO is to ensure that children disclosing abuse are not further victimized by the intervention systems designed to protect them. Services offered include forensic interviews, children and family advocacy, mental health therapy, and school and community-based prevention education programs.
The DDRB provides funding for the following program:
Offers specialized sexual abuse prevention education delivered directly to special education students, or to teachers and para-educators who learn to present the material in smaller groups.
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Pediatric home health company that works with parents, guardians, caregivers, and teachers to foster more independence and enhance development throughout a child’s daily routine. Accepts most major health insurance plans. Provide physical, occupational and speed/language therapy. Services are offered in the home, school, or community. Physician prescription is required. Serves St. Louis, St. Charles and Jefferson counties.
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This organization honors and affirms the naturally-occurring human experience of gender independence and normalizes this experience through connection, support and resources. Connects families through locally established TransParent support groups, supports and encourages parents to act on behalf of their child’s best interests, organizes experienced and knowledgeable resources to assist families with their child’s gender journey.
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Provides horseback riding instruction for individuals with disabilities as a means of therapy and recreation. Classes include sports riding, hippotherapy, developmental vaulting, carriage driving and competition team. No referral necessary. Must be over 24 months of age.
DDRB provides funding for the following program:
EQUINE THERAPY: Therapy for children and adults while participating in horse riding lessons (group or individual) to improve neuromotor function and sensory processing. A variety of horsemanship skill sessions and competition opportunities are offered.
True You Recovery CenterPointe
True You Recovery CenterPointe
WEBSITE
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True You Recovery is a designated safe space for members of the LGBTQ+ community to access substance use treatment. In addition to providing a comprehensive substance use treatment curriculum, True You Recovery will also provide: An environment which allows clients to be their authentic self throughout treatment.
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Provides skill development, employment options, respite, independent living skills training, residential options, family life education, social/leisure activities for adults, developmental and therapeutic services for children birth to three years of age. Primarily serves individuals with severe, profound, and multiple physical/cognitive disabilities.
DDRB provides funding for the following programs:
TALENT CONNECT: A collaborative vocational training program to prepare individuals aged 18 and over for employment in the hospitality industry. The program focuses on building direct job related skills, and soft skills that are employer led with the assistance of on-site training staff. Training is based at the job site with the intent to hire from the trained applicant pool. The duration of the training is up to 12 weeks or no more than 240 hours.
SUPPORTED EMPLOYMENT: Provides services of up to 6 hours or less per month to support an individual in competitive community employment.
ADAPTIVE EQUIPMENT AND ASSISTIVE TECHNOLOGY: Provides individualized assessment and recommendations for appropriate equipment and administers funds for the purchase of assistive technology, adaptive equipment and home/vehicle modifications that support safety and accessibility to improve independence at home, work or in the community.
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TTY: 314-535-6560 Provides child day care resource and referral for children who have special needs or disabilities. Parents receive ongoing assistance and counseling regarding appropriate child care options and resources available. On-site technical assistance is available to child care providers for short-term consultations and child specific training to assist in caring for a child with special needs.
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Early intervention services, including physical therapy, occupational therapy, speech/language therapy, augmentative communication evaluations, and family support programs. Serves children with developmental disabilities from birth through 5 years of age.
DDRB provides funding for the following programs:
EARLY INTERVENTION: On-site individualized strategies and supports that stimulate the child’s learning and development. Available to children birth to 3 years of age.
FAMILY SUPPORT AND EDUCATION: Family and child supports are offered individually or in small groups and are designed to provide emotional support while educating parents about their child’s disability including medical needs, educational opportunities, sources of funding, equipment needs, etc.
HIGH INTENSITY EARLY INTERVENTION: Provides intensive supports to develop skills in the areas of social interactions, communication, sensory integration and functioning within daily routines for children from birth to age 3.
THERAPEUTIC INTERVENTIONS IN THE CLASSROOM: Provides additional services of occupational, speech, and Applied Behavior Analysis therapy for children aged 18 months to three years exhibiting significant deficits.
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Toll free: 800-427-4626 TDD: 314-539-4010 A telephone referral service providing referrals to more than 1,500 health and human service organizations serving residents of the St. Louis metropolitan area.
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Dial 2-1-1 from any landline phone for fast, free and confidential assistance 24 hours a day, 7 days a week. The program offers referral services for programs such as food pantries, utility assistance, crisis intervention, support groups, counseling, etc.
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A charitable organization that provides medical grants to help children gain access to health-related services not covered, or not fully covered by their family’s commercial health insurance plan. Families may receive up to $5,000 annually per child ($10,000 lifetime maximum per child), and do not need to have insurance through UnitedHealthcare to be eligible. Applications must meet certain criteria to be considered for a grant. Visit their website for information and grant application.
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Zachary’s Playground at Hawk Ridge Park, 8392 Orf Road in Lake Saint Louis and Brendan’s Playground at Westhoff Park, 810 Westoff Park in O’Fallon are fully accessible playgrounds that allow all children, regardless of their abilities, to play together. The playgrounds include ramps to allow access to higher elements of the playgrounds, wheelchair accessible glider swings, areas with UV protected awnings, water play, metal slides for those with hearing implants, swings with back/arm supports, and a variety of climbers to challenge all.
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Provides children with disabilities access to vital medical equipment and therapy services as well as the opportunity to participate in innovative Camp and Performing Arts programs.
The DDRB provides funding for the following program:
ADAPTIVE EQUIPMENT AND ASSISTIVE TECHNOLOGY: Provides individualized assessment and recommendations for appropriate equipment and administers funds for the purchase of assistive technology, adaptive equipment and home/vehicle modifications that support safety and accessibility to improve independence at home, or in the community.
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Enhances quality of long-term care services by advocating for resident’s rights, providing information, and community education. Individuals, families and professionals are served by staff trained in resident rights, placement and government funding assistance such as Medicaid. No referral is necessary and services are offered to residents of St. Louis City, St. Louis County, St. Charles County, Jefferson County and Franklin County.
ADDRESS
INFO
ADDRESS
INFO
Agency provides supports to individuals with developmental disabilities, based on a person centered planning approach where the services are designed by the individual with their support team. Services include the Individualized Supported Living (ISL) program, providing up to 24 hour residential support and Independent Supported Living Assistance (ISLA) averaging 7 hours a week of independent skills training. Areas of particular focus include community involvement, self-determination, protective oversight and continual growth toward independence. Another service, Project HEART, offers person-centered health education classes, skills training and resource information to people with development disabilities and those supporting them.
The DDRB provides funding for the following programs:
PROJECT HEART: Health education and adult lifestyle education classes in a small group setting using curriculum specifically designed for adults with developmental disabilities.
ISLA (INDEPENDENT SUPPORTED LIVING ASSISTANCE): Provides services of up to 50 hours per month to support an individual to live independently in the community. Supports promote the development of skills for independence for the individual to stay in their own residence and access the community.
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24-hour hotline, 636-946-3771. Assist at-risk youth by providing services which strengthen families, build self-esteem, and develop independent living skills. Services for youth ages 9-21 include crisis intervention, counseling, emergency shelter and long-term care, case management, school assistance/counseling, job training, street outreach, Early Head Start (ages 0-3), Head Start (ages 3-5), in-home and center-based care and training for parents living in St. Charles, Lincoln, Warren and Montgomery counties. Pregnant women and parents of children up to age three are eligible as well as children with disabilities. Shelter hours are 24 hours a day, seven days a week. No referral necessary.
Youth Working Forward
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Offers an online employment tool to assist individuals with their employment needs. The tool provides information in an easy to use format and provides helpful assistance for individuals of all ages. Tools and resources are available for developing resumes and cover letters, developing interviewing skills, networking, job search tips and preparing for employment.
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Guide for Locating a Quality Organization
Families face many decisions when planning life choices for a loved one with a developmental disability. One important choice is the selection of a provider of supports that meets the expectations of the entire family. The following questions and consideration are designed to help families make informed decisions.
- What is the mission statement of the provider? Most agencies that serve persons with developmental disabilities are not-for-profit organizations that rely on a mission statement to express their philosophy of services. A well-founded sense of mission helps express the “who, how, and why” of their service delivery system.
- What is the financial condition of the agency and how long has the organization been providing services? Long-term stability assures consistent services to the family.
- What are the eligibility criteria to receive services?
- Is the agency diverse and flexible enough to meet the variety of special needs that arise as the family member ages? What is the staffing ratio for the individuals served? Can the organization properly meet the individual’s needs?
- Who pays for services? Is the state solely responsible or can the family participate through direct payment or charitable giving?
- Who coordinates the delivery of services (case management functions), i.e. private or governmental entity?
- Is the agency accredited, licensed, or certified, and by what entity?
- What are the qualifications of the staff? How extensive is staff training and does the staff seem satisfied with their employment? Is there an excessive turnover rate? Staff members provide higher quality services when they enjoy a good work environment.
- Are current clients and families pleased with the services they receive? Interview as many as possible and ask to see results of any “consumer satisfaction” surveys.
- What is the agency’s application process and is there a waiting list to receive services?